Dr. Ayman El-Hattab
Chairman
Dr. Ayman El-Hattab, Consultant and Professor of Clinical Genetics, is the chairman of the MENA Organization for Rare Diseases and the president of the yearly MENA Congress for Rare Diseases.
Meet the dedicated professionals working tirelessly to make a difference in the lives of those affected by rare diseases across the MENA region. Our team combines expertise, compassion, and commitment to serve our community.
Dr. Khedidja Hedna
Lead Patient Advocate
Dr. Khedidja Hedna is a pharmacist and a doctor in health sciences. As a public health expert, she advocates for patients with rare diseases to improve their treatments and access to care.
Dr. Khawla Ben Yahia
Coordinator, Medical Writer
Dr. Khawla Ben Yahia is an MBBS physician, medical writer, and educator dedicated to raising awareness about rare diseases in the MENA region.
Ms. Hala Abbas
Patient Advocate
Ms. Hala Abbas is a patient advocate dedicated to supporting people living with rare diseases and helping raise awareness across the rare disease community.
Join Our Mission
Are you passionate about making a difference in the rare disease community? We’re always looking for dedicated professionals to join our team.
Contact Us